地中海貧血thalassemia-展示頁(yè)
2024-10-03 23:23本頁(yè)面
【正文】 Cichuan Thalassaemia Patients Group Message from Mr. Panos Englezos, TIF Chairman Dear Friends, The Thalassaemia International Federation is pleased and encouraged to hear of your active involvement in the struggle against thalassaemia. We congratulate you for establishing this thalassaemia patients/parents group in Cichuan province of China, an initiative that will bring closer together on a platform of collaboration, mutual respect and understanding health professionals, patients and parents working to our united goal of improving the status of Clinical Management and the quality of life for Thalassaemia patients world wide. TIF’s everincreasing aim is to assist our Thalassaemia Associations to grow in strength and influence so that we can claim the attention of national health authorities to support programmes for thalassaemia on a countrywide basis. We want the national health authorities to recognise that thalassaemics can and do live full and productive lives when they are given optimal treatment, and that plications can be avoided with regular medical care and monitoring. We encourage you to act accordingly to ensure that all thalassaemics have appropriate access to the best possible treatment, and to institute countrywide policies for prevention of thalassaemia. Our goal of optimal standards of treatment and prevention as we search for a final cure for thalassaemia can be achieved if we consolidate our efforts towards this mon aim. TIF weles your participat
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